Cystic Fibrosis Research, Inc.: www.cfri.org
Cystic Fibrosis Research, Inc. is a San Francisco Bay Area based non-profit organization mission dedicated to finding a cure for CF while working to improve, extend and save the lives of children and adults with CF. CFRI funds CF research and offers educational and support programs. In 2003, CFRI instituted the Elizabeth Nash Memorial Fellowship Program to support CF research. To learn more about to the results to date, click here.
Cystic Fibrosis Foundation: www.cff.org
The CF Foundation of Bethesda, MD is the oldest non-profit organization associated with CF. Their mission involves "assuring the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease."
CF Roundtable: www.cfroundtable.com
CF Roundtable awards scholarships of up to $2500 to adults with cystic fibrosis who are pursuing career certifications, associates, bachelors and graduate degrees. CF Roundtable is operated by USACFA, an independent 501(c)(3) non-profit, tax-exempt organization which is operated entirely by adult volunteers who have cystic fibrosis. The CF Roundtable publication, website, and social media sites offer critical sources of information for CF adults regarding the nature and progression of the disease, the latest treatments and research to fight CF, and many forums for CF adults to communicate with each other. Email: [email protected]. Application: goo.gl/LJxz7L
Cystic Fibrosis Scholarship Foundation: www.cfscholarship.org
CFSF is a non-profit organization devoted to providing an opportunity for young adults with CF to further their education at a college or vocational school. CFSF scholarships are awarded based on educational achievement, leadership, and financial need as submitted by the student in the scholarship application form.
Children's Hospital of Oakland Research Institute (CHORI): www.chori.org
CHORI is an internationally renowned biomedical research institute, CHORI bridges basic science and clinical research in the treatment and prevention of human disease. CHORI is a leader in translational research, providing cures for blood diseases, developing new vaccines for infectious diseases, and discovering new treatment protocols for previously fatal or debilitating conditions, including CF.
Cystic Fibrosis Lifestyle Foundation: www.cflf.org
CFLF is a non-profit organization founded by an individual with CF. The cornerstone of CFLF’s programs are recreation grants to support adolescents and young adults with CF in their pursuit of physical activities that are both therapeutic and fun.
Disability Advocates for Cystic Fibrosis: www.dafcf.org
Disability Advocates For Cystic Fibrosis (DAFCF) is an organization that strives to help people with Cystic Fibrosis with social security disability claims.
iGive: www.igive.com
iGive is a unique organization that assists non-profits by teaming up with online retailers to donate a portion of their online receipts to charity. Nearly 700 retailers participate including Lands’ End, Barnes & Noble, Eddie Bauer, JCPenney, Expedia, and many more. These stores give up to 26% from every purchase you make to your designated charity. The Elizabeth Nash Foundation is an IRS registered non-profit organization which participates in the iGive network.
Lisa Greene & Parenting Children with Health Issues
Lisa Greene, parent of two children with CF, has partnered with Foster Cline, MD of the Love & Logic Institute to author a book and teach a series of workshops specific to parenting children with special needs. Lisa also serves as a parent coach and has developed a website with tips for parents of children with CF - www.TipsForCFParents.com.
NIH/Medline: medlineplus.gov/
Medline is the U.S. National Library of Medicine's® (NLM) premier bibliographic database that contains over 15 million references to journal articles in life sciences with a concentration on biomedicine.
San Francisco Foundation: www.sff.org
The San Francisco Foundation is a community foundation dedicated to building strong communities, fostering civic leadership, and promoting philanthropy. The Elizabeth Nash Foundation was started with administrative support from the San Francisco Foundation.
The Power of Two: A Twin Triumph Over Cystic Fibrosis
The Power of Two, is a memoir authored by Ana and Isa, identical twins born in Los Angeles in 1972 and diagnosed with CF at 3 days of age. The book recounts their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will likely die young. Ana and Isa, both double lung transplant recipients, also filmed a documentary inspired by their book. The film is a feature-length, character-driven documentary in production with international implications about the importance of organ donation and transplantation, Cystic Fibrosis awareness and related health causes.
Cystic Fibrosis Research, Inc. is a San Francisco Bay Area based non-profit organization mission dedicated to finding a cure for CF while working to improve, extend and save the lives of children and adults with CF. CFRI funds CF research and offers educational and support programs. In 2003, CFRI instituted the Elizabeth Nash Memorial Fellowship Program to support CF research. To learn more about to the results to date, click here.
Cystic Fibrosis Foundation: www.cff.org
The CF Foundation of Bethesda, MD is the oldest non-profit organization associated with CF. Their mission involves "assuring the development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease."
CF Roundtable: www.cfroundtable.com
CF Roundtable awards scholarships of up to $2500 to adults with cystic fibrosis who are pursuing career certifications, associates, bachelors and graduate degrees. CF Roundtable is operated by USACFA, an independent 501(c)(3) non-profit, tax-exempt organization which is operated entirely by adult volunteers who have cystic fibrosis. The CF Roundtable publication, website, and social media sites offer critical sources of information for CF adults regarding the nature and progression of the disease, the latest treatments and research to fight CF, and many forums for CF adults to communicate with each other. Email: [email protected]. Application: goo.gl/LJxz7L
Cystic Fibrosis Scholarship Foundation: www.cfscholarship.org
CFSF is a non-profit organization devoted to providing an opportunity for young adults with CF to further their education at a college or vocational school. CFSF scholarships are awarded based on educational achievement, leadership, and financial need as submitted by the student in the scholarship application form.
Children's Hospital of Oakland Research Institute (CHORI): www.chori.org
CHORI is an internationally renowned biomedical research institute, CHORI bridges basic science and clinical research in the treatment and prevention of human disease. CHORI is a leader in translational research, providing cures for blood diseases, developing new vaccines for infectious diseases, and discovering new treatment protocols for previously fatal or debilitating conditions, including CF.
Cystic Fibrosis Lifestyle Foundation: www.cflf.org
CFLF is a non-profit organization founded by an individual with CF. The cornerstone of CFLF’s programs are recreation grants to support adolescents and young adults with CF in their pursuit of physical activities that are both therapeutic and fun.
Disability Advocates for Cystic Fibrosis: www.dafcf.org
Disability Advocates For Cystic Fibrosis (DAFCF) is an organization that strives to help people with Cystic Fibrosis with social security disability claims.
iGive: www.igive.com
iGive is a unique organization that assists non-profits by teaming up with online retailers to donate a portion of their online receipts to charity. Nearly 700 retailers participate including Lands’ End, Barnes & Noble, Eddie Bauer, JCPenney, Expedia, and many more. These stores give up to 26% from every purchase you make to your designated charity. The Elizabeth Nash Foundation is an IRS registered non-profit organization which participates in the iGive network.
Lisa Greene & Parenting Children with Health Issues
Lisa Greene, parent of two children with CF, has partnered with Foster Cline, MD of the Love & Logic Institute to author a book and teach a series of workshops specific to parenting children with special needs. Lisa also serves as a parent coach and has developed a website with tips for parents of children with CF - www.TipsForCFParents.com.
NIH/Medline: medlineplus.gov/
Medline is the U.S. National Library of Medicine's® (NLM) premier bibliographic database that contains over 15 million references to journal articles in life sciences with a concentration on biomedicine.
San Francisco Foundation: www.sff.org
The San Francisco Foundation is a community foundation dedicated to building strong communities, fostering civic leadership, and promoting philanthropy. The Elizabeth Nash Foundation was started with administrative support from the San Francisco Foundation.
The Power of Two: A Twin Triumph Over Cystic Fibrosis
The Power of Two, is a memoir authored by Ana and Isa, identical twins born in Los Angeles in 1972 and diagnosed with CF at 3 days of age. The book recounts their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will likely die young. Ana and Isa, both double lung transplant recipients, also filmed a documentary inspired by their book. The film is a feature-length, character-driven documentary in production with international implications about the importance of organ donation and transplantation, Cystic Fibrosis awareness and related health causes.