Cystic Fibrosis Research, Inc.: www.cfri.org
Cystic Fibrosis Research, Inc. is a San Francisco Bay Area based non-profit organization mission
dedicated to finding a cure for CF while working to improve, extend and save the lives of children and
adults with CF. CFRI funds CF research and offers educational and support programs. In 2003, CFRI
instituted the Elizabeth Nash Memorial Fellowship Program to support CF research. To learn more
about to the results to date, click here.
Cystic Fibrosis Foundation: www.cff.org
The CF Foundation of Bethesda, MD is the oldest non-profit organization associated with CF. Their
mission involves "assuring the development of the means to cure and control cystic fibrosis and to
improve the quality of life for those with the disease."
Cystic Fibrosis Scholarship Foundation: http://cfscholarship.org/
CFSF is a non-profit organization devoted to providing an opportunity for young adults with CF to
further their education at a college or vocational school. CFSF scholarships are awarded based on
educational achievement, leadership, and financial need as submitted by the student in the
scholarship application form.
Children's Hospital of Oakland Research Institute (CHORI): www.chori.org
CHORI is an internationally renowned biomedical research institute, CHORI bridges basic science
and clinical research in the treatment and prevention of human disease. CHORI is a leader in
translational research, providing cures for blood diseases, developing new vaccines for infectious
diseases, and discovering new treatment protocols for previously fatal or debilitating conditions,
including CF.
Cystic Fibrosis Lifestyle Foundation: www.cflf.org
CFLF is a non-profit organization founded by an individual with CF. The cornerstone of CFLF’s
programs are recreation grants to support adolescents and young adults with CF in their pursuit of
physical activities that are both therapeutic and fun.
Disability Advocates for Cystic Fibrosis: www.dafcf.org
Disability Advocates For Cystic Fibrosis (DAFCF) is an organization that strives to help people with
Cystic Fibrosis with social security disability claims.
iGive: www.igive.com
iGive is a unique organization that assists non-profits by teaming up with online retailers to donate a
portion of their online receipts to charity. Nearly 700 retailers participate including Lands’ End,
Barnes & Noble, Eddie Bauer, JCPenney, Expedia, and many more. These stores give up to 26%
from every purchase you make to your designated charity. The Elizabeth Nash Foundation is an IRS
registered non-profit organization which participates in the iGive network.
Lisa Greene & Parenting Children with Health Issues
Lisa Greene, parent of two children with CF, has partnered with Foster Cline, MD of the Love & Logic
Institute to author a book and teach a series of workshops specific to parenting children with special
needs. Lisa also serves as a parent coach and has developed a website with tips for parents of
children with CF - www.TipsForCFParents.com.
NIH/Medline: medlineplus.gov/
Medline is the U.S. National Library of Medicine's® (NLM) premier bibliographic database that
contains over 15 million references to journal articles in life sciences with a concentration on
biomedicine.
San Francisco Foundation: www.sff.org
The San Francisco Foundation is a community foundation dedicated to building strong communities,
fostering civic leadership, and promoting philanthropy. The Elizabeth Nash Foundation was started
with administrative support from the San Francisco Foundation.
The Power of Two: A Twin Triumph Over Cystic Fibrosis
The Power of Two, is a memoir authored by Ana and Isa, identical twins born in Los Angeles in 1972
and diagnosed with CF at 3 days of age. The book recounts their lifelong struggle to pursue normal
lives with cystic fibrosis while grappling with the realization that they will likely die young. Ana and
Isa, both doubling lung transplant recipients are now in their later 30s and busy filming a
documentary inspired by their book. The film is a feature-length, character-driven documentary in
production with international implications about the importance of organ donation and transplantation,
Cystic Fibrosis awareness and related health causes.
Cystic Fibrosis Research, Inc. is a San Francisco Bay Area based non-profit organization mission
dedicated to finding a cure for CF while working to improve, extend and save the lives of children and
adults with CF. CFRI funds CF research and offers educational and support programs. In 2003, CFRI
instituted the Elizabeth Nash Memorial Fellowship Program to support CF research. To learn more
about to the results to date, click here.
Cystic Fibrosis Foundation: www.cff.org
The CF Foundation of Bethesda, MD is the oldest non-profit organization associated with CF. Their
mission involves "assuring the development of the means to cure and control cystic fibrosis and to
improve the quality of life for those with the disease."
Cystic Fibrosis Scholarship Foundation: http://cfscholarship.org/
CFSF is a non-profit organization devoted to providing an opportunity for young adults with CF to
further their education at a college or vocational school. CFSF scholarships are awarded based on
educational achievement, leadership, and financial need as submitted by the student in the
scholarship application form.
Children's Hospital of Oakland Research Institute (CHORI): www.chori.org
CHORI is an internationally renowned biomedical research institute, CHORI bridges basic science
and clinical research in the treatment and prevention of human disease. CHORI is a leader in
translational research, providing cures for blood diseases, developing new vaccines for infectious
diseases, and discovering new treatment protocols for previously fatal or debilitating conditions,
including CF.
Cystic Fibrosis Lifestyle Foundation: www.cflf.org
CFLF is a non-profit organization founded by an individual with CF. The cornerstone of CFLF’s
programs are recreation grants to support adolescents and young adults with CF in their pursuit of
physical activities that are both therapeutic and fun.
Disability Advocates for Cystic Fibrosis: www.dafcf.org
Disability Advocates For Cystic Fibrosis (DAFCF) is an organization that strives to help people with
Cystic Fibrosis with social security disability claims.
iGive: www.igive.com
iGive is a unique organization that assists non-profits by teaming up with online retailers to donate a
portion of their online receipts to charity. Nearly 700 retailers participate including Lands’ End,
Barnes & Noble, Eddie Bauer, JCPenney, Expedia, and many more. These stores give up to 26%
from every purchase you make to your designated charity. The Elizabeth Nash Foundation is an IRS
registered non-profit organization which participates in the iGive network.
Lisa Greene & Parenting Children with Health Issues
Lisa Greene, parent of two children with CF, has partnered with Foster Cline, MD of the Love & Logic
Institute to author a book and teach a series of workshops specific to parenting children with special
needs. Lisa also serves as a parent coach and has developed a website with tips for parents of
children with CF - www.TipsForCFParents.com.
NIH/Medline: medlineplus.gov/
Medline is the U.S. National Library of Medicine's® (NLM) premier bibliographic database that
contains over 15 million references to journal articles in life sciences with a concentration on
biomedicine.
San Francisco Foundation: www.sff.org
The San Francisco Foundation is a community foundation dedicated to building strong communities,
fostering civic leadership, and promoting philanthropy. The Elizabeth Nash Foundation was started
with administrative support from the San Francisco Foundation.
The Power of Two: A Twin Triumph Over Cystic Fibrosis
The Power of Two, is a memoir authored by Ana and Isa, identical twins born in Los Angeles in 1972
and diagnosed with CF at 3 days of age. The book recounts their lifelong struggle to pursue normal
lives with cystic fibrosis while grappling with the realization that they will likely die young. Ana and
Isa, both doubling lung transplant recipients are now in their later 30s and busy filming a
documentary inspired by their book. The film is a feature-length, character-driven documentary in
production with international implications about the importance of organ donation and transplantation,
Cystic Fibrosis awareness and related health causes.
Elizabeth Nash Foundation
PO Box 1260
Los Gatos, CA 95031-1260
PO Box 1260
Los Gatos, CA 95031-1260
| DEDICATED TO IMPROVING THE LIVES OF THOSE AFFECTED BY CYSTIC FIBROSIS |
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